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Motor Neurone Disease becomes notifiable, fulfilling Illawarra advocate's final wish

A former Illawarra resident's campaign to track MND outcomes has reached fruition despite his passing.

By The Daily Wollongong · Published 26 June 2026

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This article was written by AI from the linked sources and was not reviewed by a journalist before publishing. The Daily Wollongong is part of The Daily Network and follows our reasonable editorial care.

A campaign by a former Illawarra man to make Motor Neurone Disease a notifiable disease has finally succeeded, even though he did not live to see the achievement. His daughter said he would be 'over the moon' at the outcome, according to the Illawarra Mercury.

The designation means MND cases will now be tracked and reported systematically, improving medical understanding of the disease's prevalence and progression. For Wollongong residents and the Illawarra health community, notifiable disease status creates a clearer picture of MND's impact locally and may drive research and support service development. The University of Wollongong's Yerbury Lab researchers are among those actively involved in MND research, stepping out of the laboratory this week to participate in fundraising for FightMND, demonstrating the Illawarra's emerging role as a centre of investigation into the disease.

Sources: illawarramercury.com.au, uow.edu.au.

References Sourced but Not Limited to:

uow.edu.au · The yerbury lab researchers brave the big freeze for mnd research

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